Fundraising for health in Freehold

  • 2022-04-11
A fundraiser is on the schedule in Freehold to raise money in support of research into a rare condition, and to help those dealing with the disease.

Steve and Randi Tanenbaum are the hosts of the event, which will support research into a rare genetic disorder known as Smith-Magenis Syndrome (PRISMS), as well as parents whose family members are PRISMS patients.

A buffet is planned, and there will be a DJ and several raffles, including a 50/50, and more. Complimentary valet parking is included. Organizers of events like this could work with brochure printing to create literature explaining the subject.

The developmental disorder known as Smith-Magenis syndrome (SMS) can affect many different areas of the body. The major indicators of the syndrome include sleep disturbances, unique facial features, delays in developing language and speech skills, intellectual disability of varying degrees of impairment, and behavioral problems.

Most people who have the condition have experienced a loss of genetic material from every cell in one area of chromosome 17. Although there are many genes in this region, researchers believe losing one specific gene, RAI1, causes most of the features exhibited by SMS patients. The loss of genetic material, in most cases, is not hereditary, but occurs randomly. Treatment depends on the symptoms displayed in each case.

The fundraiser is scheduled for May 12, from 6.00 pm until 10.00 pm, at Aurum Events on South Street in Freehold.