The healthcare system and other supports can make a big difference in helping those living with a rare disease, and this will be explored as part of a conference scheduled for South Portland.
There are many challenges faced by those who live with a rare disease, and these can leave an individual feeling isolated and alone.
The October event will be open to healthcare providers as well as patients, their families and other stakeholders. The agenda is filled with presentations, discussions and other activities, and it will also offer information about resources and other supports.
The presentations will focus on an assortment of topics, and clinical trials, navigating the area’s health care system, advocating for a special needs child in both their school and for their medical needs, and many other subjects will all be addressed. The registration fee covers the cost of meals and snacks, and those who require childminding so that they can participate will be able to access this service on site as well.
Being diagnosed with a rare disease can be an overwhelming experience, and attending an event like this can offer a grounding stone. Conference packages that include promotional Pens, Brochures and other printed publications can be an easy way of providing the attendees with resources that can be helpful to them, and a printer will be able to supply all of these.
South Portland’s DoubleTree by Hilton will be hosting this conference for the rare disease community on October 26. The registration fee starts at $30.
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